The Meningioma Statement& Patient Information & Resources
Founded in 1999 for the benefit and support of meningioma patients, we are dedicated
to providing help and information to those of us whose lives have been touched
by this rare tumour of the brain or spinal cord.
We are the only national meningioma organisation in the UK, and one of only a handful of meningioma groups across the world. Maybe that’s why we receive enquiries from patients in countries across Europe, and as far away as China and Peru.
We offer a range of support & information sent free on request to meet the needs of patients and carers:
· National Telephone Helpline
· Patient Information leaflets free on request
· Email support
· Website
· Talking Heads online Forum
· One to One patient support
· Talking Heads phone groups
· Newsletter/e-bulletin
· Patient Information Day
· Monthly Patient/Carer group in Cambridge
We are wholly self-supporting so we need your support and your generosity to keep going.
We have no paid staff and no offices to maintain so we keep our costs to the minimum. We are truly grateful for your gifts and terrific fund-raising activities.
However small, however large your donation, we spend it all on patient support. Not a penny is wasted and that’s our promise:
Donations (no cash please) to Meningioma UK may be sent to us at the address above or contact us for more details.
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Tel 01787 374084 or email support@meningiomauk.org for more information on our activities across the UK
email:enquiries@meningiomauk.org / tel 01787 374 084
1 Meningioma Fact Sheet
2 Questions Guide - helps you find the right Qs to ask your doctors
3 Spinal Meningioma - notes and information on treatment options
4 Radiotherapy Notes
5 Craniotomy Post-op Notes on surgery and the post-op period
6 Coping With Fatigue - a common problem for very many of us
7 Relationships, Children, Powers of Attorney, Wills, Getting Legal Advice
8 Driving and DVLA
9 Glossary - medical terms explained