A - Z List of support groups holding meetings across Britain and Ireland
3 New Meningioma UK brain tumour support Groups begin March 2012
Venues: Enfield, N London; Ashford, Kent; Cambridge
Sat 31 March 2012
The Seminar Room - in X-Ray dept.
The William Harvey Hospital
Ashford, Kent, TN24 OLZ
Local organiser: Christine Hogg
01787 374 084
Enfield, N London
Saturday, 24th March from 2.30 - 4
Enfield Town Library
66 Church Street
Enfield
EN2 6AX.
Local Organiser: Susan Scott
01787 374 084
Cambridge
The Mary Wallace Cancer Centre
7 Red Cross Lane
Cambridge CB2 2QU
Close to Park & Ride & Addenbrooke’s Hospital
Quarterly meetings begin March 2012 tbc
Local Organiser: Ella Pybus
Belfast, N Ireland
Samuel Irwin Lecture Theatre
Royal Victoria Hospital, Belfast
Monthly 2nd Wednesday of each month except Jul, Aug, Dec. 7.30pm
Run by Brainwaves
0289 337 2505
Key co-ordinator: Kate Ferguson
HAMMER OUT BRAIN TUMOUR - SUPPORT GROUPS
Bristol Exeter Southampton Wareham Cheltenham Worcester Staffordshire
Bristol: Meeting every third Wednesday in the month (except August) 11.00am-3.00pm. Venue: Hammer Out, Unit One, Thornbury Office Park, Midland Way, Thornbury, Bristol BS35 2EW. Contact Anne Coles 07923 413304 or 01454 422701.
Exeter: Meeting every first Friday in the month (except August) 2.00-3.30pm. Venue: FORCE Cancer Support Centre, Barrack Road, Exeter EX2 5DW. Contact Anne Coles 07923 413304 or 01454 422701.
Southampton: Meeting every second Wednesday in the month (except August) 2.00-3.30pm. Venue: Macmillan Centre, Southampton Hospital, Tremona Road Southampton SO16 6YD. Contact Anne Coles 01454 422701 or 07923 413304.
Wareham: Meeting every first Tuesday bi-monthly (except August) 1.30-3.00pm. Venue: Springfield Hotel, Grange Road, Wareham, Dorset BH20 5AL. Contact Anne Coles 01454 422701 07923 413304.
Cheltenham: Meeting every second Tuesday in the month (except August) 2.00-3.30pm. Venue: Maggie's Centre, College Baths Road, Cheltenham GL53 7QB. Contact Rosemary Wormington 07546 912534 or 01454 422701.
Worcester: Meeting every other month usually first Friday in the month 10.30-12.30pm. Venue: St Richards Hospice, Wildwood Drive, Worcester, WR5 2LG (01905) 763963. Contact Rosemary Wormington 07546 912594 or 01454 422701.
Staffordshire: Meeting most months 3rd Thursdays in the month 7pm – 8.30pm
Venue : currently Clinical Education Centre, University Hospital of North Staffordshire , London Road, ST4 6QG. Contact Rosemary Wormington 07546 912594 or 01454 422701.
Cambridge
The Cambridge Meningioma Group
Tel Ella 01787 374 084
enquiries@meningiomauk.org
New at The Mary Wallace Cancer Centre
7 Red Cross Lane, Cambridge CB2 2QU
4 mins walk from Addenbrooke’s Hospital
Quarterly meetings start 2012
website: www.meningiomauk.org
The Acoustic Neuroma and Meningioma Network (AMNET)
Quarterly meetings in Cambridge for patients diagnosed with acoustic neuroma
or vestibular Schwannoma brain tumour
website:www.amnet-charity.org.uk
Brain Tumour UK starts a new support group for High grade glioma patients 10th Jan 2012 at The Cambridge Cancer Support Centre, Gt Shelford, Cambridge.
Carlisle
Harraby Community Centre
Edgehill Road
Carlisle
(Jnct 42 M6)
Details to be advised
Cork, Ireland
Cork University Hospital
Wilton
Cork
Monthly
Irish Cancer Society
National Helpline: 1800 200 700
Cork office: 021-450 9918 or
353 21 450 9918 if dialling from outside Ireland
Coventry
Social Club
Walsgrave Hospital
Clifford Bridge Road Coventry
Monthly, open to all patients diagnosed with a brain tumour, and families, friends.
Tel Ian Edwards
024 7653 5757
Doncaster
Meet every third Wednesday in the month Run by Brain Tumour UK supporter, Gail Swindell. Contact Brain Tumour UK on 0845 450 0386 for details
Dublin, Ireland
Education Centre
St Luke’s Hospital
Highfield Road
Dublin
Monthly on the
2nd Wednesday at 7.30pm
Irish Cancer Society
National Helpline: 1800 200 700
Dublin office: 01-2310 500 or
353 21 2310 500 if dialling from outside Ireland
Edinburgh
Maggie’s Centre
Western General Hospital
Monthly
1st Tuesday at 7pm
No meetings in Jan or Jul
Alice MacGregor
0131 334 3609
Glasgow
Beaston Oncology Centre
Western Infirmary
Monthly
2nd Monday at 7.30pm
Sheena Muir
0141 942 4475
Haywards Heath, Sussex
Clair Hall
Monthly
Last Thursday from 7pm to 830pm
Mike Brookes (co-ordinator):
01403 263719 evenings after 7pm
Hertfordshire
Kathy Stakounis, a Brain Tumour UK supporter, is organising a group to take place in Hertfordshire. Contact Brain Tumour UK’s helpline 0845 450 0386 for more info
Huddersfield
Peregrine House
7 Brooks Yard
Market Street
HUDDERSFIELD
HD1 2EP
Mary, a Brain Tumour UK supporter, is organising a group to take place in Huddersfield.
Contact Brain Tumour UK helpline 0845 450 0386 for details
Ipswich Suspended till further notice.
Leeds
Cookridge Hospital
Hospital Lane
Tel: (0113) 267 3411
Monthly
First Tuesday in the month, 6.00pm to 7.30pm
Samantha Wilson, Neuro-Oncology Nurse Specialist
Liverpool
Patient Liaison Service (PALS)
Liverpool
The Neurosupport Centre
Norton Street
Liverpool
L3 8LR
Dates vary, usually quarterly, between 7pm to 9pm
Please contact Tony Murphy, Patient Support Worker
or Maureen Kelly: 0151 298 2999
Maureen@neurosupport.org.uk
www.neurosupport.org.uk
London
St Thomas Hospital
Richard Dimbleby Centre
2nd Floor
Lambeth Palace Road
London
“Brainteasers”
for those, aged 16 to 45ish, diagnosed with a brain tumour. Alternate Mondays 2pm to 4.30pm
Richard Dimbleby Centre
0207 188 5918. Run by Barbara.
London
The Resource Room
Bloomsbury Healthcare Library
Bonham Carter House
52 Gower St, London
Support group for low-grade glioma patients, family and friends. Meets 1st Tues ever month, 6pm to 8pm. Emma Townsley
Neuro-Oncology Clinical Nurse Specialist
Tel 0845 155 5000 ext 724122
Emma.townsley@uclh.nhs.uk
London
Dragon Hall
17 Stukeley Street
LONDON
WC2B 5LT
GMAC – for Gay/Bi Men affected by cancer
2ND Wednesday of the month 7pm to 9pm. Emotional support and info. Run by Jose Veiga, Chair, London Friend, a charity supporting the LGBT community
www.londonfriend.org.uk/gmac
Middlesborough
Holistic Cancer Centre
James Cook Hosptial
1st Tues each month
6pm to 7.30pm
Run by Brain Tumour Action
Gill Hendry, 01642 854 347
Newcastle upon Tyne
Conference Room
Regional Neurosciences Unit
Newcastle General Hospital
1st Wed each month from
2 – 4 pm. Not August.
Run by Lynn Park: Macmillan Neuro-oncology CNS
0191 233 6161 ext 21060
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Norwich Brain Tumour UK East
Big C Cancer Centre, Norfolk & Norwich Univ. Hospital, Colney, Norwich
First Wed of the month 1.30 - 3.30 for patients and carers
Call Big C Centre 01603 286 112 or Brain Tumour UK
Or Meningioma UK: 01787 374 084 <enquiries@meningiomauk.org>
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Oxford
1A Ridgeway House
Hagbourne Road
For children with a brain or spinal tumour and their families. Run by Oscar
www.support-oscar.org
01235 816310
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Southampton
Contact Headstrong for more details on venue. Meets monthly. Headstrong: for those diagnosed with a brain tumour. Headstrong Friends: for carers - contact Headstrong
PO Box 1127
Southampton SO16 4WL
Tel: 0774 7194585
Fax: 02380 669304
Headstrongheads@aol.com
Southampton
British Acoustic
Neuroma Association Meetings held quarterly, Sat mornings, Queen Alexandra Hospital, Cosham, and Southampton General Hospital Jenny Benger
17 Palmerston Way
Gosport
Hampshire
PO12 2LY
Tel: 023 92 581845
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Portsmouth
Brain Tumour UK
Held in Portsmouth by Maria Christidou, Brain Tumour UK Trustee Further information available on request via Brain Tumour UK’s Helpline 0845 450 0386. nb cancelled till further notice
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Sutton, Surrey
Royal Marsden NHS Trust
Downs Road
Sutton
Carers’ group: OPD waiting area
Patients’ group: Richard Wells Rehab Centre
Monthly, third Thursday at 7.30pm to 9pm.
Two support groups: one for carers and one for those diagnosed with a brain tumour
For the carers’ group, contact Douglas Guerrero on 020 8661 3036
For the patients’ group, contact Helen White on 020 8661 3038
National Organisations with Various UK Locations
The Pituitary Foundation
Over 40 support groups across the UK run by the Pituitary Foundation
Contact them:
PO Box 1944, Bristol BS99 2UB or
Tel: 0870 774 3355
helpline@pituitary.org.uk
The Association of British Neurologists
www.theabn.org
TO HELP BRAIN TUMOUR RESEARCH - YOUR DONATION MAKES THE DIFFERENCE!
Epilepsy Action (has local branches as well as national helpline)
New Anstey House
Gate Way Drive
Yeadon
Leeds LS19 7XY
0113 210 8800
Freephone Helpline 0808 800 5050
www.epilepsy.org.uk
Brain Tumour UK Email: enquiries@braintumouruk.org.uk
Website: www.braintumouruk.org.uk